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Privacy Policy

Last updated: 22 September 2026

This policy describes how FIRALIS SAS processes the personal data collected as part of the ALZEVIT clinical study (ID-RCB No.: 2026-A00246-45) and when you use the alzevit.com and inclusion.alzevit.com websites, in accordance with Regulation (EU) 2016/679 (GDPR) and the amended French Data Protection Act No. 78-17 of 6 January 1978.

1. Data controller

FIRALIS SAS, as sponsor of the ALZEVIT clinical study, is the controller of the personal data processed as part of the study.

FIRALIS SAS
35 rue du Fort
68330 Huningue, France
SIREN: 504 944 364
Phone: +33 (0) 3 89 91 01 10
Email: alzevit@firalis.com

2. Data Protection Officer (DPO)

FIRALIS SAS has appointed a Data Protection Officer (DPO):
Prof. Dr. Hüseyin FIRAT – Data Protection Officer
hueseyin.firat@firalis.com

3. Data processed and purposes

Taking part in the ALZEVIT study

When you register on the secure inclusion.alzevit.com platform, and during the study, the following data are collected:

  • identification and contact data: last name, first name, date of birth, email address, phone number and kit delivery address;
  • answers to the eligibility criteria, the health questionnaire and the socio-demographic questions;
  • electronically signed consent form;
  • genetic data resulting from the analysis of your saliva sample.

These data are used for scientific research purposes, as part of the ALZEVIT study. No data is used for commercial or advertising purposes. Processing is carried out in accordance with the CNIL reference methodology MR-001, with which FIRALIS has undertaken to comply.

Contact form

When you use the contact form on alzevit.com, your name, email address, phone number and message are sent to the ALZEVIT team in order to answer your request.

Browsing the websites

The website hosting providers process technical connection data (IP address, browser type) required for the websites to operate securely. The websites use no audience measurement tool and no advertising tracker. To find out more, see the Cookies page.

4. Recipients of the data

Data can only be accessed by authorised FIRALIS staff, within the limits of their duties. FIRALIS uses technical service providers acting on its behalf: certified health data hosting (Microsoft Azure), electronic signature of the consent form (Yousign), email delivery (Resend) and hosting of the public website (IONOS).

5. Study duration and data retention

  • The planned duration of Phase A of the ALZEVIT study is 18 months.
  • The essential study documents are kept for at least 15 years after the end or termination of the study.
  • Genetic data are kept for 15 years.
  • Clinical data are pseudonymised and access to them is restricted to authorised persons, with appropriate technical and organisational measures to ensure their confidentiality and security.

6. Data hosting and transfers

Data entered online are hosted in France, on a secure infrastructure certified for health data hosting (HDS) – Microsoft Azure, France Central region – managed by FIRALIS. No transfer of study data outside the European Union is currently planned.

The public website alzevit.com is hosted in the European Union (IONOS, Germany). Some fonts (Google Fonts) and images (Unsplash) are loaded from third-party servers, and the Contact page includes a Google Maps map: displaying them sends your IP address to these services, which may process it outside the European Union. No study data is involved.

7. Your rights

In accordance with the applicable regulations, you have the following rights over your personal data:

  • right of access;
  • right to rectification;
  • right to restriction of processing;
  • right to object;
  • right to withdraw your consent, where applicable.

The exercise of certain rights may be subject to the limitations provided for by the regulations applicable to scientific research, depending on the nature of the data concerned and the stage of the research.

To exercise your rights, contact the Data Protection Officer at hueseyin.firat@firalis.com or the ALZEVIT team at alzevit@firalis.com.

You may also lodge a complaint with the French data protection authority (CNIL): www.cnil.fr.